European oncology health data landscape must be improved

The new study of EFPIA (European Federation of Pharmaceutical Industries and Associations) outlines that platforms for health data management are rarely user-friendly.

There are some ongoing challenges in oncology health data the EFPIA study points out:

  • The lack of interoperability between systems limits the ability to link different sources of health data. For instance, the study mentioned that in the UK, there are more than 100 commercial suppliers of EHR (electronic health record) software. Therefore, in 2018, the European Commission announced the development of technical specifications for a European EHR exchange format, to enable the European data space.
  • Software and platforms for health data are rarely user-friendly, limiting the ability to collect sufficient high-quality data. Interviews with oncologists in France, Italy and Spain emphasized the complexity, low user experience, and high requirement for manual processing across their hospitals’ EMR (electronic medical record) systems.
  • Existing technologies may be outdated or likely to become so in view of growing analytical and processing requirements. Awareness, understanding and mastery of these technologies currently remains limited to more advanced IT and digital companies, highlighting the need for increased availability, remuneration and training of these skills.

As next steps for a better European health data landscape the EFPIA study hihglights that machine learning and blockchain have the potential to revolutionize healthcare data. Although still at a pioneering stage, these show promise in their potential to accelerate data collection, improve quality and foster transparency.

The EFPIA study emphasizes that blockchain (a list of data blocks secured by complex codes and accessed via a transparent ledger) will foster better data privacy, and support a clear audit trail across a secure platform with decentralized ownership. It is also mentioned that a number of start-ups are already operating in this space.

Hypertrust Patient Data Care is one of those start-ups leveraging the combination of blockchain technology and Trusted Computing Appliance to offer benefits especially on the topics of data and patient safety due to ensured authenticity and immutability of data. The combination of blockchain technology and Trusted Computing Appliance offers benefits especially in the area of patient data protection while still obtaining the possibility to evaluate this data in an anonymized way.

Beside that, it is decentralized and every participating party has a blockchain code to ensure the chain of custody and identity at the highest possible security level. The Hypertrust Patient Data Care platform is not replacing existing core systems but offers a seamless integration with them to provide an easy user-experience with selected blockchain benefits.



The oncology data landscape in Europe: report